Occurring only every four years during leap years, Rare Disease Day takes place on the unusual date of February 29 - a symbolic act underscoring the rarity and uniqueness of these medical challenges.
This year's focus is on the global community and the shared pursuit of better treatment options, research, and support for those affected. Rare diseases affect an estimated 300 million people worldwide, but due to their low prevalence, they are often challenging to diagnose and can pose significant hardships in daily life.
Healthcare professionals, researchers, patient organizations, and the general public are encouraged to engage, share information, and emphasize the urgency of funding research and supporting rare diseases.
Many events are planned worldwide to draw attention to this important cause. Experts will report on the latest research developments at conferences, while those affected and their families will share their stories to promote understanding and empathy.
The challenges faced by people with rare diseases can be diverse - from inadequate treatment options to social stigmas. International Rare Disease Day provides an opportunity to acknowledge these challenges, amplify the voices of those affected, and engage in a global dialogue on ways to improve the situation.
In a time when the world is grappling with many health issues, it is crucial not to forget those affected by rare diseases. Today's day is an opportunity to raise awareness and intensify efforts to research and manage these often overlooked conditions.
Further information on Rare Disease Day in Switzerland can be found here.